Mon, May 01 - Wed, May 31 2017

Kids Program Lip Sync Battle,

New York, New York, United States New York, New York, United States

  • About the event

    The Children’s Tumor Foundation Kids Program is pleased to announce the 2017 Kids Program Lip Sync Battle.  Children are able to become actively involved with the Foundation and lip sync while raising funds towards the cause.  Participants will create a 2 1/2 minute video and ask family and friends to vote.  Voting will take place throughout the month of May.


    Why should you sponsor?

    The Children's Tumor Foundation funds research for neurofibromatosis (NF), which is a genetic disorder that causes tumors to grow anywhere throughout the body.  NF affects one in every 3,000 people world-wide. There is no effective treatment or cure. 

    Angela Earle

    From 2010 to 2016, the Children’s Tumor Foundation’s primary objective has been to fill the clinical drug development pipeline. We strategically integrated our investments into this clinical pipeline, resulting substantial accomplishments by the end of those five years:

    • Over 70% of all NF data in the world has been funded or co-funded by CTF.
    • CTF investments in the last five years ($26.6M) have already attracted $38.4M in follow-up funding from other sources.
    • CTF’s NF Preclinical Consortium and NF Therapeutic Consortium (NFPC and NFTC) have generated 115 preclinical studies which have led to 16 clinical trials.
    • One of those trials (MEK inhibitor) resulted in over 50% of participants in a clinical trial seeing a reduction of at least 20% in their inoperable plexiform neurofibromas.
    • CTF created the NF Registry, which attracted over 7,500 patients by the end of 2016, and whose information was utilized 22 times to recruit patients to clinical trials.
    • The CTF Biobank collected more than 200 tissue samples and a body donation program is in place.
    • CTF built an innovative research model called Synodos, which attracted a “dream team” of scientists who pledged to work together collaboratively.
    • CTF launched an NF data hub, providing an open access data platform to all.
    • CTF collaborated with the National Institutes of Health (NIH), Congressionally Directed Medical Research Program (CDMRP), and Neurofibromatosis Therapeutic Acceleration Program (NTAP) to build a common grant repository for an easy visualization of the NF funding landscape.

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  • 101-250 attendees expected

    40% Male Attendees

    60% Female Attendees

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